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Development of a Scale to Measure Life Transition Process in Parents of Children with Autism

Journal of Korean Academy of Nursing 2012³â 42±Ç 6È£ p.861 ~ 869
KMID : 0806120120420060861
Àֶ̾õ ( Lee Ae-Ran ) - ¿ø±¤´ëÇб³ °£È£Çаú

È«¼±¿ì ( Hong Sun-Woo ) - ´ëÀü´ëÇб³ ÀÀ±Þ±¸Á¶Çаú
ÁÖ¼¼Áø ( Ju Se-Jin ) - ³²¼­¿ï´ëÇб³ °£È£Çаú

Abstract

Purpose: The purpose of this research was to develop a scale to measure the life transition process of parents of children with
autism, against the backdrop of a lack of research on this topic.

Methods: Seventy preliminary items were drawn from previous
qualitative research, and content validity was tested by three professors as well as three parents of children with autism. A
questionnaire survey was also done between August 2011 and February 2012. Data were collected from 207 parents of children
with autism and analyzed using descriptive statistics, item analysis, Cronbach¡¯s alpha, Pearson correlation coefficients,
and factor analysis with the SPSS Win 15.0 program.

Results: Twenty-nine items were selected to constitute the appropriate
measuring scale and categorized into 5 factors explaining 63.2% of the total variance. The 5 factors were named; stages of
denial (5 items), wandering (6 items), devotion (7 items), frustration (3 items), and finally acceptance (8 items). Cronbach¡¯s alpha
for the 29 items was .80.

Conclusion: The results of this study not only suggest assessment criteria for the life transition process
of parents who have children with autism but also provide basic directions for program development to provide differentiated
support and care at each stage.
KeyWords

Autistic disorder, Parents, Transition, Scale
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